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Life With Ichthyosis: Meet the Teacher

September is here again and the kids are going back to school. Every year, every new teacher, we go through what we call “the short version.” Sure, the school has the 504 plan and the highlighted...

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Ichthyosis and School: Initiating a 504 Plan

Near the end of preschool, we contacted the school district about creating a 504 plan*  for Cookie. Some districts have a specific district coordinator that handles special needs evaluation, while in...

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Ichthyosis and School: Cookie’s First Day of Kindergarten

At our old house, the elementary school was a few blocks away from our house. School started at a nice, reasonable 9am, so I had plenty of time to get Cookie out the door. The “meet the classmates at...

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Life With Harlequin Ichthyosis: School Daze

Our guest post today is by Shannon, mom to Lauren. Lauren is 8 years old and a Brownie Girl Scout. ————– “If there were no schools to take the children away from home part of the time, the insane...

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The Myth of the Unaffected Child

Earlier this week on Facebook, we saw an excellent post from Laurie Fiore as part of Ichthyosis Awareness Month. Two of Laurie’s children have a form of ARCI. Taking a page from Carly’s project, we...

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Back to School 2013

It’s that time again – school is coming! Our kids don’t start until September, but many districts start in mid to late August. I got all our supply shopping done earlier this month and spent an...

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Playground Trauma

So…. we are eight weeks into school. Three of my kids have teachers new to both the school and the district, so we had to go through the whole spiel back on Meet the Teacher night. The oldest one is...

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